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Person-focused care for young people with rheumatic and musculoskeletal diseases: young rheumatologists' and EULAR Young PARE perspectives
  1. Alessia Alunno1,
  2. Paul Studenic2,
  3. Elena Nikiphorou3,4,
  4. Petra Balážová5,6,
  5. Linda van Nieuwkoop5,
  6. Sofia Ramiro7,
  7. Francesco Carubbi8,9,
  8. Christophe Richez10,
  9. Nele Caeyers5,
  10. Laure Gossec11,12 and
  11. Marios Kouloumas5,13
  1. 1 Rheumatology Unit, Department of Medicine, University of Perugia, Perugia, Italy
  2. 2 Division of Rheumatology, Department of Internal Medicine 3, Medical University Vienna, Vienna, Austria
  3. 3 Department of Academic Rheumatology, King’s College London, London, UK
  4. 4 Department of Rheumatology, Whittington Hospital, London, UK
  5. 5 Patient, EULAR Young PARE, Zurich, Switzerland
  6. 6 Slovak League Against Rheumatism, Piestany, Slovakia
  7. 7 Department of Rheumatology, Leiden University Medical Center, Leiden, The Netherlands
  8. 8 Rheumatology Unit, Department of Biotechnological and Applied Clinical Sciences, University of L’Aquila, L’Aquila, Italy
  9. 9 Department of Medicine, ASL1 Avezzano-Sulmona-L’Aquila, L’Aquila, Italy
  10. 10 Department of Rheumatology, FHU ACRONIM, Pellegrin Hospital and UMR CNRS 5164, Bordeaux University, Bordeaux, France
  11. 11 Sorbonne Universités, UPMC Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique (UMRS 1136), Paris, France
  12. 12 Department of Rheumatology, Hôpital Pitié Salpêtrière, AP-HP, Paris, France
  13. 13 Cyprus Legue Against Rheumatism, Aglantzia, Cyprus
  1. Correspondence to Marios Kouloumas; kouloumas.m{at}cytanet.com.cy

Abstract

In recent years, the evolution of healthcare challenged the management of people with rheumatic and musculoskeletal diseases (RMDs). From disease-centred care to person-focused care, a holistic approach along with patient empowerment about their disease, improved the physician-patient relationship and allowed to achieve better outcomes with lower healthcare costs. Nevertheless, RMDs may occur from childhood to the old age and to date very few studies have addressed the needs and priorities of young people with RMDs. However, the image of RMDs is still associated with the elderly population. In this regard, the group of young people with arthritis and rheumatism in Europe (PARE) was recently developed within European League Against Rheumatism to represent the voice of the young affected and to carry out projects aiming for a better understanding of these specific aspects. This viewpoint discusses the needs and priorities of young people compared with adult people with RMDs, based on the available literature and on the results of the PARE Youth research project, aiming to identify the next steps of actions that need to be taken to improve the current situation.

  • Patient Perspective
  • Health Services Research
  • Multidisciplinary Team-care

This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/

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Footnotes

  • Contributors All coauthors drafted the manuscript and approved the final version.

  • Competing interests None declared.

  • Provenance and peer review Not commissioned; externally peer reviewed.