RT Journal Article
SR Electronic
T1 Undifferentiated connective tissue disease: state of the art on clinical practice guidelines
JF RMD Open
JO RMD Open
FD EULAR
SP e000786
DO 10.1136/rmdopen-2018-000786
VO 4
IS Suppl 1
A1 Antunes, Margarida
A1 Scirè, Carlo Alberto
A1 Talarico, Rosaria
A1 Alexander, Tobias
A1 Avcin, Tadej
A1 Belocchi, Chiara
A1 Doria, Andrea
A1 Franceschini, Franco
A1 Galetti, Ilaria
A1 Govoni, Marcello
A1 Hachulla, Eric
A1 Launay, David
A1 Lepri, Gemma
A1 Macieira, Carla
A1 Matucci-Cerinic, Marco
A1 Montecucco, Carlo Maurizio
A1 Moraes-Fontes, Maria Francisca
A1 Mouthon, Luc
A1 Paolino, Sabrina
A1 Ramoni, Veronique
A1 Tani, Chiara
A1 Tas, Sander W
A1 Tincani, Angela
A1 Van Vollenhoven, Ronald
A1 Zen, Margherita
A1 Fonseca, Joao
A1 Bombardieri, Stefano
A1 Fonseca, João Eurico
A1 Schneider, Matthias
A1 Smith, Vanessa
A1 Cutolo, Maurizio
A1 Mosca, Marta
A1 Beretta, Lorenzo
YR 2019
UL http://rmdopen.bmj.com/content/4/Suppl_1/e000786.abstract
AB The term ‘undifferentiated connective tissue disease’ (UCTD) is generally used to describe clinical entities characterised by clinical and serological manifestations of systemic autoimmune diseases but not fulfilling the criteria for defined connective tissue diseases (CTDs). In this narrative review, we summarise the results of a systematic literature research, which was performed as part of the ERN ReCONNET project, aimed at evaluating existing clinical practice guidelines (CPGs) or recommendations.No specific CPG on UCTD were found, potential areas of intervention are absence of a consensus definition of UCTD, need for specific monitoring and therapeutic protocols, stratification of UCTD based on the risk of developing a defined CTD and preventive measure for the future development of a more severe condition.Patients feel uncertainty regarding the name of the disease and feel the need of a better education and understanding of these conditions and its possible changes over time.