PT - JOURNAL ARTICLE AU - Glintborg, Bente AU - Jensen, Dorte Vendelbo AU - Terslev, Lene AU - Hendricks, Oliver AU - Østergaard, Mikkel AU - Horskjær Rasmussen, Simon AU - Jensen, Mogens Pfeiffer AU - Adelsten, Thomas AU - Colic, Ada AU - Danebod, Kamilla AU - Kildemand, Malene AU - Loft, Anne Gitte AU - Munk, Heidi Lausten AU - Pedersen, Jens Kristian AU - Østgård, René Drage AU - Møller Sørensen, Christian AU - Krogh, Niels Steen AU - Agerbo, Jette AU - Ziegler, Connie AU - Hetland, Merete Lund TI - Nationwide, large-scale implementation of an online system for remote entry of patient-reported outcomes in rheumatology: characteristics of users and non-users and time to first entry AID - 10.1136/rmdopen-2022-002549 DP - 2022 Nov 01 TA - RMD Open PG - e002549 VI - 8 IP - 2 4099 - http://rmdopen.bmj.com/content/8/2/e002549.short 4100 - http://rmdopen.bmj.com/content/8/2/e002549.full SO - RMD Open2022 Nov 01; 8 AB - Aims In May 2020, a nationwide, web-based system for remote entry of patient-reported outcomes (PROs) in inflammatory rheumatic diseases was launched and implemented in routine care (DANBIO-from-home). After 1.5 years of use, we explored clinical characteristics of patients who did versus did not use the system, and the time to first entry of PROs.Methods All patients followed in DANBIO were informed about DANBIO-from-home by electronic invitations or when attending their clinic. Characteristics of patients who did/did not use DANBIO-from-home in the period after implementation were explored by multivariable logistic regression analyses including demographic and clinical variables (gender, age group, diagnosis, disease duration, use of biological disease-modifying agent (bDMARD), Health Assessment Questionnaire (HAQ), Patient Acceptable Symptom Scale (PASS)). Time from launch to first entry was presented as cumulative incidence curves by age group (<40/40–60/61–80/>80 years).Results Of 33 776 patients, 68% entered PROs using DANBIO-from-home at least once. Median (IQR) time to first entry was 27 (11–152) days. Factors associated with data entry in multivariate analyses (OR (95% CI)) were: female gender (1.19 (1.12 to 1.27)), bDMARD treatment (1.41 (1.33 to 1.50)), age 40–60 years (1.79 (1.63 to 1.97)), 61–80 years (1.87 (1.70 to 2.07), or age >80 years (0.57 (0.50 to 0.65)) (reference: age <40 years), lower HAQ (0.68 (0.65 to 0.71)) and PASS ‘no’ (1.09 (1.02 to 1.17). Diagnosis was not associated. Time to first entry of PROs was longest in patients <40 years of age (119 (24–184) days) and shortest in the 61–80 years age group (25 (8–139) days).Conclusion A nationwide online platform for PRO in rheumatology achieved widespread use. Higher age, male gender, conventional treatment and disability were associated with no use.All data relevant to the study are included in the article or uploaded as supplemental information. Data are available upon reasonable request.