Clearness regarding the disease course | |
MOD: “What is most important for you in rheumatology care?” | P1: “I have had two rheumatologists, one was very vague, when I left his office I thought I still know nothing. Now I have one who’s very clear, I leave his office in seven min and I just love that. I don’t like endless stories, I want to know where I stand.” |
MOD: “Clearness about the treatment you mean?” | P1: “just being specific. I like that very much.” |
Accessibility of healthcare providers | |
MOD: “What is most important for you in rheumatology care?” | P2: “there are possibilities of evening consultations.” |
P3: “and e-mailing or telephoning the doctor personally?” | |
P2: “I have never done it, but it is possible.” | |
MOD: “so accessibility is expressed by the possibility to e-mail or call the healthcare provider?” | P1: “yes and that you are called back the same day and you have an appointment within just two days.” |
P3: “I experienced the same with my previous rheumatologist, it was very pleasant…Even during the Christmas holidays I could call her if needed.” | |
P4: “someone who can be reached in the evening and by e-mail” | |
Availability of rheumatology nurses | |
MOD: “What is most important for you in rheumatology care?” | P1: “I know that if I didn’t have my rheumatology nurse, I would not be satisfied with my rheumatology care.” |
P4: “I see my rheumatologist for seven min and my rheumatology nurse for one hour…She explains everything and has enough time for it” | |
Shared decision making | |
MOD: “What is most important for you in rheumatology care?” | P6: “I have RA for years, at the beginning of my disease I found the attention of the doctor pleasant. Now I want efficiency, that’s better for me. If I have something to declare, I do it, otherwise I have a regular checkup.” |
P5: “I’m my own doctor, I’m there for regular checkups and I don’t ask him anything else… You know your own body so well” | |
Interest in patient’s personal life | |
MOD: “What is most important for you in rheumatology care?” | P1: “I have three people at home who can help me, but if I was alone, my situation would be a lot different. That’s for a doctor important to assess how things are going with me.” |
Insight in comorbidity and comedication | |
MOD: “What is most important for you in rheumatology care?” | P6: “patient who have other chronic diseases besides RA have to be taken into account” |
P1: “a very important issue. There are a lot of RA patients who are getting older” | |
An overview of joints limiting the patient | |
MOD: “What is most important for you in rheumatology care?” | P2: “it is remarkable that only the tender and swollen joints are being considered. In my case I’m being restricted by other joints.” |
P5: joints with prosthesis, what about them? | |
MOD: “those won’t be taken into account” | P1: “ that’s odd, those joints are limiting…there are also stiff joints without inflammation. Those are not always tender.” |
MOD, Moderator.