Table 1

Overview of the five Nordic clinical rheumatology registers

SwedenDenmarkNorwayFinlandIceland
NameSRQ/ARTISDANBIONOR-DMARDROB-FINICEBIO
First established19902000200019992007
Target populationInitially an early RAs and a biologics-register, later opened to all inflammatory joint diseasesInitially a biologics register, since 2005 open to all inflammatory joint disease regardless of treatmentA multicenter biologic register for rheumatic disordersA nationwide biologic register for rheumatic disordersA nationwide biologic register for rheumatic disorders
Data collectionWeb-based reporting at (dr/pt) or before (pt) routine clinical visitsWeb-based reporting by patient (PROMs) and doctor at routine clinical visitsWeb-based reporting by patient (PROMs) and doctor at routine clinical visitsWeb-based reporting by patient (PROMs) and doctor at routine clinical visitsWeb-based annual reporting (dr/pt) at routine clinical visits
Types of data collectedDisease activity and antirheumatic treatmentDisease activity and antirheumatic treatmentDisease activity and ant-rheumatic treatmentDisease activity and antirheumatic treatmentDisease activity, biologics and antirheumatic treatment
Coverage (RA)Around 80%80%–90%33 95%
Patients in the register (ever)
 All88 08958 70011 53724 0001675
 RA50 08032 200526610 900645
 Ankylosing spondylitis
 /spondyloarthritides		9941410022912789340
 Psoriatic arthritis12 269910023122270420
 Other diagnoses15 79913 30016688041270
Biologic disease-modifying 
antirheumatic drug treatment starts
 Etanercept16 60310 70024384190690
 Adalimumab13 283840016173656270
 Infliximab11 941930090622301285
 Certolizumab pegol333728001500531<10
 Golimumab46212300867927205
 Abatacept3364160013657215
 Rituximab63001900407118090
 Tocilizumab3242230023046395
 Secukinumab73028245025
 Apremilast459150210<10
 Any tumour necrosis factor inhibitors biosimilar86197400690180525

  • Diagnoses and treatments currently covered.

  • dr, doctor; PROM, patient-reported outcome measures; pt, patient; RA, rheumatoid arthritis