Table 3

Synthesis of the physicians’ unmet needs

Unmet need related withUnmet needsDescription
StakeholdersPatients’ preferenceNone of the CPGs are based on patients preference.
Multidisciplinary working groupNone of the CPGs involved >2 different specialities.
CPGs scope and targetsDiagnosisNone of the CPGs provide a integrated strategy for diagnosis.
Extramuscular involvement
(other than skin)
Only one eminence-based CPG cover diagnosis and management of ILD.
No CPG specifically address management of heart, joints and gastroenterological manifestations.
Management by subgroups of IIMsNone of the CPG is personalised by subgroup of inflammatory myopathies below than DM versus other IIMs.
Activity and damage assessmentOnly one eminence-based CPG specifically addresses disease activity and damages assessment.
Life or organ-function threatening complicationsNone of the CPG cover management of life or organ-function threatening complications.
ComorbiditiesNone of the CPG cover comorbidities prevention, diagnosis and treatment.
Transition managementNone of the CPG targets transition management.
  • CPGs, clinical practice guidelines; DM, dermatomyositis; IIM: idiopathic inflammatory myopathy; ILD: interstitial lung disease.