Table 1

Domains, instruments and questionnaires included in SpA-Net

DomainReported byInstrumentInterval (minimum)*
Demographic characteristicsPatientQuestionnaire (education, marital state, employment, alcohol, smoking)1 year
Work, productivityPatientWPAI416 months
Quality of life, health statePatientSF-36,42 EQ-5D,43 ASAS Health Index441 month (SF-36), 6 months (EQ-5D, ASAS Health Index)
Physical functionPatientBASFI,45 HAQ-S466 months
Patient globalPatientNRS (global disease activity last week)1 month
FatiguePatientFatigue question of BASDAI47Every visit
PainPatientVAS1 month
Experience with carePatientModified PREM481 year
Medical history, comorbidityPhysicianNAUpdated every visit
Medication usePhysicianNAUpdated every visit
Adverse eventsPhysician, patientNAUpdated every visit
SpA manifestationsPhysicianChecklist: inflammatory back pain, peripheral arthritis, enthesitis, dactylitis, psoriasis, uveitis, IBD, elevated CRP, NSAID response, recent GI or urogenital infection, positive family history, sacroiliitis on X-ray/MRI, HLA-B27 statusUpdated every visit
Disease activityPhysician, patientASDAS,49 BASDAI,47 CRP, ESREvery visit
Physician globalPhysicianVAS (disease activity)Every visit
Spinal mobilityPhysicianChest expansion, occiput to wall, modified Schober, cervical rotation, lateral spinal flexionOn indication
Peripheral symptomsPhysicianSJC66, TJC68, presence and location of dactylitis, presence and location of enthesitis in 65 sitesEvery visit
Skin/Nail involvementPhysicianBody surface area, presence of nail psoriasisOn indication
Laboratory resultsPhysicianHaemoglobin, white blood cell count, platelet count liver/renal functionOn indication
  • *Minimum interval between assessments of the domain. Visits to the rheumatologist are not predefined, but scheduled according to the opinion of the care provider. Consequently, the interval between assessments of domains can vary among patients but will never be shorter than the minimum interval reported here.

  • ASAS, Assessment of SpondyloArthritis International Society;ASDAS, Ankylosing Spondylitis Disease Activity Score;BASDAI, Bath Ankylosing Spondylitis Disease Activity Index;BASFI, Bath Ankylosing Spondylitis Functional Index;CRP, C reactive protein;EQ-5D, EuroQoL-5D;ESR, erythrocyte sedimentation ratio;GI, gastrointestinal;HAQ-S, Health Assessment Questionnaire for Spondyloarthropathies;HLA-B27, human leucocyte antigen B27;IBD, inflammatory bowel disease;NA, not applicable; NRS, Numerical Rating Scale;NSAID, non-steroidal anti-inflammatory drug;PREM, patient-reported experience measure;SF-36, 36-Item Short Form Health Survey;SJC, swollen joint count;SpA, spondyloarthritis;TJC, tender joint count;VAS, Visual Analogue Scale;WPAI, Work Productivity and Activity Impairment.