Results of the ERN ReCONNET survey on clinical practice guidelines adherence in rare and complex connective tissue disorders: the perspective of healthcare professionals
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ERN-ReCONNET survey on the use of clinical practice guidelines for HCPs InstructionsThe survey should take less than 10 minutes, and your responses are completely anonymous. You can only take the survey once and all questions are required. The survey is designed to be compled by experts of the following diseases:
We really appreciate your input!
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| Results | |
| Your age | % |
| <25 years | – |
| 25–34 years | 21.4 |
| 35–44 years | 33.9 |
| 45–54 years | 26.8 |
| 55–64 years | 17.9 |
| >65 years | – |
| Where do you work? | % |
| Austria | – |
| Belgium | 6 |
| Bulgaria | – |
| Croatia | – |
| Cyprus | – |
| Czech Republic | – |
| Denmark | – |
| Estonia | – |
| Finland | – |
| France | 16 |
| Germany | 8 |
| Greece | – |
| Hungary | – |
| Ireland | – |
| Italy | 36 |
| Latvia | – |
| Lithuania | – |
| Luxembourg | – |
| Malta | – |
| Netherlands | 10 |
| Norway | – |
| Poland | 2 |
| Portugal | 12 |
| Romania | 4 |
| Slovakia | – |
| Slovenia | 4 |
| Spain | 2 |
| Sweden | – |
| United Kingdom | – |
| Please select the option that best suits your healthcare provider (HCP) | % |
| General hospital | 3.6 |
| University hospital | 91.1 |
| Private hospital/healthcare service | 1.8 |
| Academic unit affiliated with general hospital | 1.8 |
| Mix of general and university hospital | 1.8 |
| What is the volume of your centre? (the average number of rCTDs patients seen per year) | % |
| Fewer than 150 yearly | 3.6 |
| 150–250 yearly | 3.6 |
| 250–350 yearly | 10.7 |
| 350–450 yearly | 5.4 |
| More than 450 yearly | 76.8 |
| How many years have you been practising your specialty? | |
| <5 | 19.6 |
| 5–10 | 21.4 |
| 10–15 | 16.1 |
| >15 | 42.9 |
| How many physicians in your centre are actually working on rCTDs patients? | |
| <3 | 3.5 |
| 3–5 | 16.1 |
| 5–10 | 41.1 |
| >10 | 39.3 |
| What is/are your main area of expertise? (more than one option possible) | % |
| APS | 46.4 |
| EDS | 3.6 |
| IIM | 42.9 |
| IgG4 | 14.3 |
| MCTD | 44.6 |
| RP | 16.1 |
| SS | 44.6 |
| SLE | 75.0 |
| SSc | 62.5 |
| UCTD | 39.3 |
| Using well-constructed CPGs will improve patient care From 1 (strongly disagree) to 5 (strongly agree) | % |
| 1 | – |
| 2 | 1.8 |
| 3 | 1.8 |
| 4 | 33.9 |
| 5 | 62.5 |
| CPGs would not improve the care I give to patients From 1 (strongly disagree) to 5 (strongly agree) | % |
| 1 | 41.1 |
| 2 | 42.9 |
| 3 | 7.1 |
| 4 | 8.9 |
| 5 | 0.0 |
| I find it helpful to apply CPGs in clinical practice From 1 (strongly disagree) to 5 (strongly agree) | % |
| 1 | 0 |
| 2 | 1.8 |
| 3 | 5.4 |
| 4 | 50.0 |
| 5 | 42.8 |
| Existing CPG in my area of expertise are very few or lacking From 1 (strongly disagree) to 5 (strongly agree) | % |
| 1 | 3.6 |
| 2 | 17.9 |
| 3 | 33.9 |
| 4 | 37.5 |
| 5 | 7.1 |
| Existing CPG in my area of expertise are well constructed and valid From 1 (strongly disagree) to 5 (strongly agree) | % |
| 1 | 1.8 |
| 2 | 30.4 |
| 3 | 33.9 |
| 4 | 32.1 |
| 5 | 1.8 |
| How often do you use CPG when assessing patients? | % |
| Never | 1.8 |
| Less than once a week | 16.1 |
| More than once a week | 37.5 |
| Always | 44.6 |
| How often do you use CPG when diagnosing patients | % |
| Regularly | 82.1 |
| Occasionally | 10.8 |
| Never | 7.1 |
| How often do you use CPG when considering treatment options? | % |
| Regularly | 87.5 |
| Occasionally | 12.5 |
| Never | – |
| How often do you use CPGs when monitoring patients? | % |
| Regularly | 67.9 |
| Occasionally | 30.4 |
| Never | 1.7 |
| Do you experience any difficulties/barriers to the application of CPG in your HCP? | % |
| Yes | 62.5 |
| No | 37.5 |
| If yes, please indicate which difficulties/barriers you experience to the application of clinical practice guidelines in your healthcare provider (more than one option possible) | % |
| Procedures and drug reimbursement | 57.1 |
| Time limit | 48.6 |
| Local legislative restrictions | 34.3 |
| Awareness/knowledge | 20.0 |
| Poor dissemination of guidelines | 17.0 |
| Do you have any proposal to increase the adherence to the clinical practice guidelines? (open question) | |
CPGs, clinical practice guidelines; rCTDs, rare and complex connective tissue and musculoskeletal diseases.