Table 1

PROMs selected for discussion in the focus groups

Name of instrument and referenceMain conceptUse in FGs
The Health Assessment Questionnaire27FunctioningRA/JIA/Still’s disease, PsA
Bath Ankylosing Spondylitis Functional Index28FunctioningSpA
Single item scale for assessing pain43
shown as Visual Analogue Scale and Numeric Rating Scale 0–10
PainAll FGs
Single item scale for assessing disease activity—Patient Global Assessment33 two differently phrased questions were shown
‘Considering all the ways in which your arthritis may affect you at this time, please make a mark below to show how you are doing’, and ‘How would you rate your disease activity today?’
Disease activityAll FGs
Functional Assessment of Chronic Illness Therapy-Fatigue44FatigueAll FGs
The 36-Item Short Form Health Survey45General healthAll FGs
  • FGs, focus groups; JIA, juvenile idiopathic arthritis; PROMs, patient-reported outcome measures; PsA, psoriatic arthritis; RA, rheumatoid arthritis; SpA, spondyloarthritis.