Themes | Sub themes | Focus groups | ||
Researchers | Mixed | PRP | ||
Current experiences of PRPs involvement in research | Researcher experiences of involving PRPs | X | X | |
Patient experiences of being involved as PRPs | X | X | ||
The role of PRP in registries and research | Complementary perspectives between researchers and PRPs | X | X | X |
The aim of patient involvement in research | X | |||
Points to consider for involving PRPs in research | Consider professional and social backgrounds of PRPs | X | ||
Provide PRPs education and training | X | X | ||
A welcoming environment for PRPs to contribute | X | X | ||
PRP involvement in different phases of the research process | PRPs as members in research committees | X | X | |
Identify questions that are most relevant to patients | X | X | ||
Select the most relevant outcomes to patients | X | X | ||
Improve recruitment strategies | X | |||
Analysis, interpretation, and dissemination of results | X | X | ||
Barriers and challenges to involving PRPs in research | Recruiting PRPs from ethnic minorities | X | ||
Researchers’ preconceptions of patients’ ability to be involved in research | X | |||
Help analyse or interpret quantitative data | X | |||
Limited financial resources | X |
PRP, patient research partner.