Table 1

Patient characteristics at last follow-up

ParametersMissings
n1306
Age, years, mean (SD)23.1 (4.1)0
Female, N (%)886 (67.8)0
JIA category, N (%)0
 Systemic JIA66 (5.1)
 Persistent oligoarthritis117 (9.0)
 Extended oligoarthritis227 (17.4)
 RF-negative polyarthritis350 (26.8)
 RF-positive polyarthritis115 (8.8)
 Enthesitis-related arthritis268 (20.5)
 Psoriatic arthritis116 (8.9)
 Undifferentiated arthritis47 (3.6)
ANA positive (at BiKeR enrollment), N (%)536 (41.0)18 (1.4)
HLA-B27 positive, N (%)326 (25.0)18 (1.4)
Disease duration, years, mean (SD)13.6 (6)8 (0.6)
Physician′s global assessment of disease activity (NRS 0–10), mean (SD), n=6211.8 (2.0)685 (52.5)
Patients in clinically inactive disease*, n (%), n=621252 (40.6)685 (52.5)
Patient-reported disease activity (NRS 0–10), mean (SD)2.8 (2.3)1 (0.1)
Patient-reported pain (NRS 0–10), mean (SD)2.6 (2.4)2 (0.2)
Patient-reported fatigue (NRS 0–10), mean (SD)3.2 (2.8)1 (0.1)
HAQ total score (range 0–3), mean (SD)0.29 (0.52)14 (1.1)
Patient-reported HRQoL, SF-36, mental component summary score, mean (SD)49.3 (9.6)44 (3.4)
Patient-reported HRQoL, SF-36, physical component summary score, mean (SD)46.8 (10.8)44 (3.4)
  • *Defined according to Wallace et al.45

  • ANA, antinuclear antibodies; bDMARD, biological disease modifying antirheumatic drug; HAQ, Health Assessment Questionnaire; HRQoL, health-related quality of life; JIA, juvenile idiopathic arthritis; NRS, Numerical Rating Scale; RF, rheumatoid factor; SF-36, Short Form-36; ys, years.