Table 2

Information about pregnancy

At the time of starting/planning your pregnancy, where you…N.%
 Already diagnosed with this disease6550.39
 I have been diagnosed during my pregnancy1410.85
 Not yet diagnosed with this disease5038.76
Before your pregnancy, did you receive a pre-conceptional counselling (any counselling before a planned pregnancy)?
 I don't know43.10
 No8968.99
 Yes3627.91
During your pregnancy, did you see your specialist (rheumatologist, immunologist, etc) regularly?
 I don't know32.33
 No6449.61
 Yes6248.06
During your pregnancy, were you followed by a multi-disciplinary team (different specialists)?
 I don't know43.10
 No7054.26
 Yes5542.64
How did your pregnancy end? What was the outcome of your pregnancy?
 I prefer not to answer10.78
 Miscarriage2015.50
 On term birth6449.61
 Preterm birth4031.01
 Other43.10
How would you rate the care you were provided during your pregnancy?
 Very Satisfied4635.66
 Satisfied3325.58
 Neutral2519.38
 Dissatisfied1511.63
 Very dissatisfied107.75