Table 2

Pain measures in AIM compared with other neuromuscular or rheumatic diseases

StudyAIM subsetsPain severity*Findings
AIMDisease comparators
SF-36 BP (additive 0–100, norm-based mean 50, SD 10); lower score, more pain
Sadjadi et al29IBMMean±SD
69±27
Mean±SD
FSHD: 67±24
MyoDys: 75±25
CMT 1: 69±26
Various NMDs: 63±26
Comparable burden of pain with IBM and other NMDs
Goreshi et al23DMNorm-based
Mean: 50
Norm-based
Mean:
SLE: 43
CLE: 54
Feldon et al22DM, PM, IBM, adult JDMNorm-based
Mean±SE
43±0.28
Norm-based
Mean±SE
RA: 42±0.85
Comparable burden of pain with RA
NHP score (0–100); higher score, more pain
Chung et al19DM, PMMean±SD
30±32
Mean±SD
RA: 49±34
OP: 33±36
OA: 41±27
Less pain in AIM compared with RA and OA (p<0.002)
INQOL score; higher score, more pain
Rose et al33DM, PM, IBMMean±SD
PM/DM: 70±20
IBM: 46±29
Mean±SD
LGMD: 45±26
FSHD: 40±23
MyoDys: 41±27
Various NMDs: 35±23
More pain in DM/PM compared with NMD
  • *If not shown, measure of dispersion not provided.

  • AIM, autoimmune idiopathic myopathy; SF-36 BP, 36-Item Short Form Bodily Pain; CLE, cutaneous lupus erythematosus; CMT 1, Charcot-Marie-Tooth type 1; DM, dermatomyositis; FSHD, facioscapulohumeral dystrophy; IBM, inclusion body myositis; INQOL, Individualised Neuromuscular Quality of Life Questionnaire; JDM, juvenile dermatomyositis; LGMD, limb–girdle muscular dystrophy; MyoDys, myotonic dystrophy; NHP, Nottingham Health Profile; NMD, neuromuscular disease; OA, osteoarthritis; OP, osteoporosis; PM, polymyositis; RA, rheumatoid arthritis; SLE, sytemic lupus erythematosus.