Table 1

Variables, questions and measurements/categories included in this analysis

VariablesQuestionsCategories/measures
Socio-demographic
AgePlease specify your ageIn years
GenderPlease specify your genderMale, female
Education levelPlease select your level of education completedNo schooling, primary school, high school, university
Employment statusWhat is your current employment status?Employed, unemployed, temporary sick leave, permanent sick leave, retired or early retired, homemaker, student
Patient association membershipAre you a member of any Support Group or Association for Spondylitis/ spondyloarthritis?Yes, no
Life habits
Physical activityDo you do any physical or sporting activity, including walking?Yes, no
SmokingPlease select the option that best describes your current smoking behaviourNon-smoker, socially, less than 10 cigs/week, 10–20 cigs/week, 21–60 cigs/week, over 60 cigs/week
Alcohol consumptionPlease select the option that best describes your alcohol consumption behaviourNever, occasionally, one to three times per month, one to two times per week, three to five times per week, every day
Diagnosis characteristics
Diagnostic delayCalculated based on the age at diagnosisIn years
Symptom durationCalculated based on the age of onset of first symptomsIn years
Disease extra-musculoskeletal manifestations
UveitisPlease indicate whether you have been diagnosed with any of the following:Uveitis
Inflammatory bowel diseasePlease indicate whether you have been diagnosed with any of the following:Inflammatory bowel disease
Treatments
NSAIDsHave you ever been treated with a non-steroidal anti-inflammatory drug for your spondylitis/spondyloarthritis?Yes, no
bDMARDsHave you ever been treated with a biologic for your spondylitis/ spondyloarthritis?Yes, no
csDMARDsHave you ever been treated with a conventional synthetic disease modifying anti-rheumatic drug for your spondylitis/ spondyloarthritis?Yes, no
  • bDMARDs, biological disease-modifying antirheumatic drugs; csDMARDs, conventional synthetic disease-modifying antirheumatic drugs; NSAIDs, non-steroidal anti-inflammatory drugs.