Variables | Questions | Categories/measures |
Socio-demographic | ||
Age | Please specify your age | In years |
Gender | Please specify your gender | Male, female |
Education level | Please select your level of education completed | No schooling, primary school, high school, university |
Employment status | What is your current employment status? | Employed, unemployed, temporary sick leave, permanent sick leave, retired or early retired, homemaker, student |
Patient association membership | Are you a member of any Support Group or Association for Spondylitis/ spondyloarthritis? | Yes, no |
Life habits | ||
Physical activity | Do you do any physical or sporting activity, including walking? | Yes, no |
Smoking | Please select the option that best describes your current smoking behaviour | Non-smoker, socially, less than 10 cigs/week, 10–20 cigs/week, 21–60 cigs/week, over 60 cigs/week |
Alcohol consumption | Please select the option that best describes your alcohol consumption behaviour | Never, occasionally, one to three times per month, one to two times per week, three to five times per week, every day |
Diagnosis characteristics | ||
Diagnostic delay | Calculated based on the age at diagnosis | In years |
Symptom duration | Calculated based on the age of onset of first symptoms | In years |
Disease extra-musculoskeletal manifestations | ||
Uveitis | Please indicate whether you have been diagnosed with any of the following: | Uveitis |
Inflammatory bowel disease | Please indicate whether you have been diagnosed with any of the following: | Inflammatory bowel disease |
Treatments | ||
NSAIDs | Have you ever been treated with a non-steroidal anti-inflammatory drug for your spondylitis/spondyloarthritis? | Yes, no |
bDMARDs | Have you ever been treated with a biologic for your spondylitis/ spondyloarthritis? | Yes, no |
csDMARDs | Have you ever been treated with a conventional synthetic disease modifying anti-rheumatic drug for your spondylitis/ spondyloarthritis? | Yes, no |
bDMARDs, biological disease-modifying antirheumatic drugs; csDMARDs, conventional synthetic disease-modifying antirheumatic drugs; NSAIDs, non-steroidal anti-inflammatory drugs.